ABOUT THIS PROJECT
Stroke affects thousands of people across the UK. Survivors of stroke are often faced with the long-term consequences that change everyday life. Adjusting to life following stroke can be a complex challenge, one that is not fully understood.
The aim of this study is to find out how stroke survivors manage life after stroke. The results of this study will help us to better understand the important issues that affect life after stroke. By doing this, we can encourage the development of new approaches that can help survivors adjust following stroke.
We would like to invite Stroke Survivors to partake in this study who have spent over a year readjusting to life after stroke. We are very interested in hearing the lessons you have learned following stroke. We believe that your experiences and the knowledge you have gained can help us to beneficially impact the lives of stroke survivors across the country.
This project is funded by Glasgow Caledonian University.
WHAT DOES BEING A PART OF THIS PROJECT INVOLVE?
Part One: Participant Interviews
Being a participant in this project involves taking part in a 60-90 minute interview. The interview does not have to be completed in one session and could be split over multiple sessions if that is your preference.
In the interview, the researcher will ask you to share your story about how stroke has affected your life. This will involve questions about how your life has changed, how well you think you have adjusted following stroke and what you find most important now.
As a result of the Coronavirus (COVID-19) health emergency, any interview in the near future will take place over the phone or through an online video call (such as Skype).
If you would like more information on this, please read the 'Participant Information Sheet' that can be found under the section titled: 'Project Documents'.
WHAT HAPPENS AFTER THE INTERVIEWS?
Part Two: Spreading the Message
We intend to ensure that the important lessons learned from this project are spread as wide an audience as possible. To achieve this we would like to hear what stroke survivors believe would be the best and most effective way of doing this. This stage of the project will involve:
Focus groups: We intend to hold focus groups with stroke survivors to determine the best ways to spread the important lessons we have learned from the interviews. The hope is to communicate with key stakeholders, such as: fellow stroke survivors, their family and friends, carers, health care professionals and policy makers. We also hope to spread these important lessons to the wider public as well.
Spreading the message: Through the activities and methods discussed in the focus groups, we will spread the lessons learned from part one of the project. This will most likely include public events and social media posts, but this will be decided together with those who take part in the focus groups.
It is important to note that you do not have to agree to join every part of the project in order to take part in the participant interviews. If you would only like to take part in the interview stage of the project then you do not have to take part in this aspect of the project.
If you would like more information, please read the 'Participant Information Sheet' that can be found under the section titled: 'Project Documents'.
HOW DO I GET INVOLVED?
We are looking to speak to survivors who:
live in the United Kingdom
are 18 years old or above
have been adjusting to life after stroke for over 12 months
If you fit these criteria and would like to participate, please read over the 'Project Documents' found below.
First read the 'Participant Information Sheet'. Then if you feel comfortable participating, please contact the research team for more information.
Contact details can be found at the bottom of this page. Please feel free to contact the team if you have any questions about the project.